Maine Developmental Disabilities Council

Transitions to Adult Healthcare

The Council has been working for the last few years on raising awareness around the difficulties that young people with developmental disabilities face when moving into the adult healthcare system.

“The wealth of information obtained from this group will help us move the needle on this work in terms of having stakeholders aligned, having identified the scope of need a bit more and now having a plan to do next steps in a logical way.” – Maine AAP

In 2018, MDDC contracted with the Maine Chapter of the American Academy of Pediatrics to fund surveys and focus group to study pediatricians’ understandings of how to successfully transition young adults with DD into adult healthcare systems. MDDC was also asked to present on the issue of transitioning to adult healthcare to 39 medical practitioners and provide information for 165 more. Directly as a result of MDDC efforts Maine CDC invested in a quality improvement healthcare firm to convene a Transitions of Care planning committee, develop measures for future quality improvement work, & develop a small pilot around care transitions.





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Maine Developmental Disabilities Council
526 Western Avenue  Unit 2
Augusta, ME 04330



139 State House Station Augusta, ME 04333


Phone: 207-480-1478 or toll free 833-713-2618